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Rare Disease Day
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161	2014 REPORT ON THE STATE OF THE ART OF RARE DISEASE ACTIVITIES IN EUROPE PART II: KEY DEVELOPMENTS IN THE FIELD OF RARE DISEASES IN EUROPE IN 2013 Add to Reading List Source URL: ec.europa.eu Language: English - Date: 2014-09-05 08:59:49 Health economics Rare disease Rare Disease Day European Organization for Rare Diseases European Medicines Agency European Centre for Disease Prevention and Control European Parliament Public health Committee of the Regions Health Agencies of the European Union Epidemiology
162	2014 REPORT ON THE STATE OF THE ART OF RARE DISEASE ACTIVITIES IN EUROPE PART III: EUROPEAN COMMISSION ACTIVITIES IN THE FIELD OF RARE DISEASES Add to Reading List Source URL: ec.europa.eu Language: English - Date: 2014-09-05 08:59:49 Health economics Rare disease European Organization for Rare Diseases European Medicines Agency Directorate-General for Health and Consumers Rare Disease Day European Centre for Disease Prevention and Control Public health European Union Health Agencies of the European Union Epidemiology
163	FOR IMMEDIATE RELEASE (Your Organization) to Join NORD in Observing Rare Disease Day (CITY, STATE, DATE[removed]NAME OF YOUR ORGANIZATION) will be joining the National Organization for Rare Disorders (NORD) and others aro Add to Reading List Source URL: rarediseaseday.us Language: English - Date: 2014-02-19 12:16:36 Rare Disease Day European Organization for Rare Diseases Rare disease National Institutes of Health Medical terms Disease National Organization for Rare Disorders Global Genes Project Greek Alliance of Rare Diseases Health Medicine Epidemiology
164	DATE GOVERNOR’S NAME STATE CAPITOL BUILDING Add to Reading List Source URL: rarediseaseday.us Language: English - Date: 2014-02-19 12:14:12 Rare disease National Institutes of Health Rare Disease Day National Organization for Rare Disorders Canadian Organization for Rare Disorders Health Medicine Epidemiology
165	Familial ALS 101 Michael Benatar ALS Advocacy Day May 13-15, 2012 Washington DC Add to Reading List Source URL: www.alsa.org Language: English - Date: 2012-06-13 11:55:18 Rare diseases Philosophy of biology Health Amyotrophic lateral sclerosis Penetrance SOD1 Mutation Genetic disorder Fals Genetics Biology Motor neurone disease
166	RARE DISEASE DAY 2014: SAMPLE LETTER TO THE EDITOR (This is intended for local or regional newspapers. If you want to submit a letter to a national newspaper, you should write one that can be submitted as an exclusive. Add to Reading List Source URL: rarediseaseday.us Language: English - Date: 2014-02-19 12:17:12 Rare disease Disease Medicine Epidemiology Health Rare Disease Day
167	SAMPLE RARE DISEASE DAY PROCLAMATION Whereas, there are nearly 7,000 diseases and conditions considered rare (each affecting fewer than 200,000 Americans) in the United States, according to the National Institutes o Add to Reading List Source URL: rarediseaseday.us Language: English - Date: 2014-02-19 12:13:48 Rare Disease Day Medicine Disease Knowledge Genetic Alliance UK Non-communicable disease Epidemiology Rare disease Health
168	DATE GOVERNOR’S NAME STATE CAPITOL BUILDING Add to Reading List Source URL: rarediseaseday.us Language: English - Date: 2014-02-19 12:14:05 Rare disease National Institutes of Health Rare Disease Day National Organization for Rare Disorders Canadian Organization for Rare Disorders Health Medicine Epidemiology
169	THE ILLUMINATOR Volume 25, Number 1 \| January, 2014 Add to Reading List Source URL: bdsra.org Language: English - Date: 2014-01-15 12:47:16 Medicine Batten disease Neuronal ceroid lipofuscinosis Lysosomal storage disease Rare Disease Day Tay–Sachs disease Fabry disease BioMarin Pharmaceutical National Institutes of Health Health Rare diseases Lipid storage disorders
170	RARE DISEASE DAY 2014: FREQUENTLY ASKED QUESTIONS What is a rare disease? Add to Reading List Source URL: rarediseaseday.us Language: English - Date: 2014-02-19 12:17:27 Rare disease National Institutes of Health Rare Disease Day Medical terms European Organization for Rare Diseases Disease Orphan drug Lyme disease Health Medicine Epidemiology

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